Monday, September 19, 2011

Where we were and where we are now

Fadhel, my baby, my youngest child, is doing great el7amdulillah.
I cannot ask Allah SWT for anything more.
When Fadhel was in the NICU, they sent a social worker to talk to me, she asked me if his brothers have seen his picture yet, and I just broke down, and I told her I can't bring myself to take a picture for him like this, it wasn't a memory I wanted to cherish it was one I'll try for the rest of my life to forget.
When Fadhel was connected to the ECMO he basically looked very much like ...
You know what? Google ECMO baby and you'll understand why I couldn't take a picture of him, I can't even put a random picture link to it here
The first time I saw him after he was connected, I almost dropped on the floor.
No one told me that when I see him I won't see his chest moving because the ECMO is doing the breathing for him, I went into his room and I saw him lying there, and I thought he was dead.
The horror of that moment still haunts me. I asked his nurse: IS HE DEAD? and of course she said no, and she explained to me that the ECMO is oxygenating his blood and they are just giving his lungs time to heal.
Throughout the time he spent on ECMO he gained a lot of water weight, he had a very significant swelling in his head on one side even his right eye swelled up.
The first picture I took for him was a day before he was one month old
It was this picture, and you can see how puffy his head looked.


Slowly he started losing the puffiness and water weight through peeing :D, and a week before he was discharged i took this picture for him




Today , well ...almost two weeks ago, here's how our huge tiny miracle look like




Baby Fadhel, 3 months after...



video

6 comments:

Maisastic said...

i just wanna say that i have been following u ever since u posted the sad post about ur 3rd and i couldnt resist ever since to check on the blog every single day hoping to hear some good news. el7amdellah 3al salameh i could imagine how horrible those days were as my second was diagnosed with a heart murmur when he first came to life too, bas allah byoltof fina w bel zghaar. u have such a cute baby boy mashallah, i shed a couple of tears when i saw the video, he's a happy baby now allah ye7meeh w ykhalleelek hal shabab :)

rare said...

Mashalla … wala he looks cute even with ECMO … inshalla ma beshof shar … w Alla ye7melek eyah

You remind me of girl Mariamty, even when she lost her hair, and when she looked pale & thin, she was the cutest & most beautiful girl I ever see, & I think I’ll remain the same! Cos still I can’t see any girl prettier than her

Dawn said...

Thank you Mais for your kind words, for caring and for your prayers the most... It means the world to me. I apologize for not updating the blog with his news earlier, our life was very hectic ... well it still is , but I thought not so many people passed by this blog, and I was wrong... I hope your babies are doing great o allah y7meehom o ykhaleehom salmeen.

Dawn said...

Yes rare with such innocence you cannot look anything but angelic. and Yes your mariam allah yer7amha is and will always be the prettiest girl I've seen too... I'm sure of that.

Jundi said...

he was cuter with the water weight :)

il hamdulila that he is better im happy for you .. Allah ya3tee il si77a w toolet il 3umur

Zait W Za3tar said...

we demand an update for baby fadhel :)